Twenty some odd years ago, I was full of idealism and dreams as most young people are. I sailed through college, began a career in fashion, had friends, relationships, vacations and lots of fun. I met the man of my dreams, Chris DeNicola. We got married and soon had a beautiful baby boy. We named him Michael. Life was good.
I was blessed with a wonderful partner in life who I loved and love so much, but until I had that baby boy, I didn’t really understand the meaning of life or that a mother’s love is so deep and pure, it can’t really be put into words. As many of you in this room know, when you have children…they become your heart. You want the best for them, you want everything for them, and you would lay down your life for them.
Michael was and always will be our pride and joy. He is 21 years old now. He is here in this room tonight…our intelligent, funny, outgoing, handsome son. He has led us on a journey that could rival an epic adventure in many ways….the reality version of Mr. Toad’s Wild Ride….and Lord knows, there are still some days that we are still on that wild ride with him! Some things never change.
Michael was the cutest, most mischievous, charming baby and toddler, but between the ages of 2 and 3, we became very concerned about certain aspects of his development. The anxiety and despair that comes with a parent’s worry can be all consuming. At age 3, we found out that Michael was on the autism spectrum. My own shock, panic, lack of knowledge and primal fear threw me into immediate action. I became the whirling dervish of networking and research. I joined groups, called famous doctors, scoured libraries and any resource I could find for information.
About a month after learning that Michael needed additional help and attention, we had assembled what my husband referred to as “The Dream Team”. We had hired extremely reputable and well know professionals – each at the top of their fields in Behavioral Intervention, Speech and Occupational Therapy. I also had Michael enrolled in a special pre-school, a play group, Gymboree, a music group….I was afraid to not do enough…to miss something…. As much as I worked to find all the right treatments and pieces, I also went through the stages of grief. I loved my little boy with every ounce of my being, but I had not been expecting this detour that took us to a place I didn’t understand. It was a place that scared me because I felt lost.
As eager as we were to have these reputable people working with our son, I can also attest to the emotional, draining exhaustion that I imagine many parents in this room have also felt at some point. I’m not talking about sleep deprivation….I’m talking about that soul sucking, spirit crushing fear, that sense of helplessness and confusion…that desperate hope that you are on the right path, that you are doing the right things, and that you are doing enough.
While Michael was learning and progressing in areas, I found that I could not always understand the direction the professionals were taking. It was like one half of the puzzle was being put together, but the other half was untouched territory. As time wore on, I was in desperate search of what I thought of as social skills. Social skills intervention proved to be very difficult to find in 1995. Michael needed more than the academic side of things and certainly more than just compliance. On a November morning, with a terrible case of pink eye that I caught from Michael as well as a terrible case of the blues – I forced myself to attend a conference I had signed up for in Fairfield, New Jersey. Dr. Barry Prizant was discussing how to promote socio-communicative speech in children with autism.
As I sat there, diligently taking notes, a group of young women sitting in front of me caught my attention. They seemed to be sharing thoughts about this presentation as well as a quiet chuckle or two amongst friends. One woman raised her hand to ask a question, she introduced herself as the Social Skills Coordinator at a special education school in New Jersey. SOCIAL SKILLS!! I had to restrain myself from throwing my arms around her then and there and tackling her to the ground, lest she should get away. I strategized how I would meet her at the next break and as soon as that break came, I cornered her before she could even get to the lady’s room. That young woman was Monica Osgood and that was the day the curtain of despair and confusion began to lift and the blurry path we were following began to come into focus. It was the beginning of understanding and feeling joy and celebration again. It was the beginning of things starting to make sense. It was the beginning of new breath being breathed into our paralyzed lives.
Monica was immediately helpful and invited me to come observe one of her social groups. I did visit and was so impressed with her and what she was doing. She was working on really great things like social reciprocity amongst peers, creative thinking and problem solving skills all in a fun and motivating way. In the short time we had been thrust into this world, I had not seen work like this being done anywhere else. She told me about Dr. Stanley Greenspan and Dr. Serena Weider and the work they were doing, how their work had changed her life and the way she wanted to work with children. I invited her to our home to meet Michael. Despite being very busy attending school full time and working full time, she agreed to start working with Michael a couple of times a week. And then….Suddenly, I wasn’t being asked to keep my son on a mat with a timer – increasing the time each day to encourage his ability to sit still…. or to color code all his toys and then create a corresponding color coded picture inventory filing system that Michael would have to use in order to ask for a toy to play with. Suddenly, I wasn’t just giving my baby an M&M for answering a question correctly 8 times. Instead, we were suddenly laughing….Michael was laughing….we were playing again, being silly, having fun, getting giggles and bright eyes asking for more. We were making games out of things and out of nothing….making social stories….desensitizing difficult “behaviors” by working through them and learning to truly understand where they were coming from….and that was just the beginning. Meeting Monica put our family on a road that made sense to all of us. It was a direction we could all believe in. That was 18 years ago and we have followed Monica all these years. We met Lauren a few years after meeting Monica. When forces brought Monica and Lauren together, I imagine lightening cracking and angels singing … A team so in sync, with incredible vision, passion and purpose, was born when they came together.
We were fortunate enough to be there for Celebrate the Children’s beginnings and watched as Monica and Lauren worked tirelessly to achieve their dream of opening a school. They and their outstanding colleagues and staff have never stopped working to keep developing that dream…helping so many children and families over the years.
That day in 1995 when I first saw Monica’s Social Skills Group at the school she was working at, I recognized her gift. As I was leaving, Monica handed me a newly minted business card (her first business card) with a charming silhouetted picture of children dancing around a tree on it. Above the tree were the words “Celebrate the Children”. “I have a dream” she said. “I hope to one day start a center or a school that really does celebrate all children…and I hope to be able to use this approach that I believe in so much, to foster and nurture a child’s potential for growth.” Little did I know that my children would be fortunate enough to metaphorically dance around that tree for years to come with many of your own children.
Shortly after Monica joined our home program, she became involved in Michael’s school program and soon after, she began a Celebrate the Children school program for pre-school children right in our school district of Mt. Arlington, NJ. She met Lauren during that time and the two of them went on to take Celebrate the Children to a whole new level. They opened a small center in Netcong, New Jersey and then they decided to start a school. I remember how hard they worked.. the red tape they had to deal with – the rules, regulations, laws…the incredible stress they were under. I was really only on the outside looking in on a small amount of what they endured, but one thing was always certain, their determination never wavered. They persevered and after so much hard work, they started their school in Netcong. They started with 3 children and began to grow. They moved to Byram township to a bigger school. The school grew, the number of students grew, the number of staff grew. More and more people heard about the rare DIR based school in Northern New Jersey. Families started moving here from around the country and the world. Celebrate the Children continued to grow, to develop, to blossom and so did their students. Needing more space…they moved to a larger school in Wharton and then needed to add the Dover campus. The future home of Celebrate the Children in Denville was on the horizon. The hard work, determination, blood, sweat and tears of many incredibly dedicated people brought all of us to our new home in Denville…and what a beautiful home it is... but as we all know – it is far more than brick and mortar. CTC has never really been about a physical location, it has always been about a philosophy of reaching, teaching, love, conviction and passion. That being said, the nice digs don’t hurt – and this beautiful new campus has been hard earned and well deserved. In these 10 years, and 6 locations, it is ultimately the effort and tireless work of two women with a dream and a vision, Monica and Lauren, an incredibly dedicated board and administration, and a tireless, exceptional group of teachers, related service personnel and aides that truly makes Celebrate the Children what it is.
Today, our son, Michael, is a graduate of Celebrate the Children. He attends college, works part time, drives a car, drives us crazy, is a wicked, cool drummer and is an overall great person. His younger sister Mia has travelled this road with us as well. She is a precious, beautiful, smart girl who is everything to us. She has been attending Celebrate the Children for the last two years, but we have been working with CTC and DCCF since she was about a year old. The difference was that although we worried about Mia, we already knew the path to follow when she was diagnosed with autism. We knew which way to go. The relief in that has been immeasurable. Certainly, life has not always been perfect – it is life after all and in our case, life highlighted by exception and beauty. We are a strong family and we have had strong allies working with us and walking with us through the difficult times. I have learned so much about love and life from my two children. They taught me a patience I didn’t know I had. They taught me to look at things in new ways. They taught me about compassion and empathy far beyond what I thought I knew. Above all, they have given us so much joy and love – even when things are hard – that joy and love trumps everything else.
Monica and Lauren, our family has been very blessed and fortunate to have both of you in our lives. If not for you, the talented staff at CTC and this wonderful school as a whole, I often wonder where our life path would have taken us, but I also believe that we were somehow divinely guided to have been passengers on this incredible journey.
Finding words to give thanks to people who changed your life in unparalleled ways is a daunting task and one that I’m not sure can be effectively achieved. Today, Celebrate the Children celebrates 10 years. Our family is so grateful for everything you have done for our children and family over the years. It has been a privilege and an honor to have been part of this amazing journey with you. Congratulations Monica and Lauren and to all of CTC, employees and parents alike. Here is to the next 10 years and beyond!
As a teacher, I am always looking for ways to make my lessons fun, exciting and motivating. I work and prepare, I prep and review. A ton of work and time go into preparing each lesson but it’s the lessons that are learned when you least expect it, that make being a teacher the most rewarding job. It’s the smile on the face of my student who proudly brings me his completed work without having to be asked. Or the special moment when one student touches the shoulder of his friend to let him know it’s his turn all on his own. It is the giggling and laughing from the students when they are dancing with each other or bouncing on the huge, blow up pillow and taking turns but don’t even realize it. Not only am I teaching lessons but there are many lessons my students have taught me that I have had to remind myself to use with my own children. For instance, they have taught me that it is far better to be patient with my own kids and give them time to do what I ask and most likely it will get done. I also must remind myself that I want my children to be independent, so I need to stop doing for them and have them do it themselves. My students have also taught me that it’s not always the words that are spoken, but the proud moments and huge smiles on their faces that speak the loudest. I know I am learning just as much from my students as they are learning from me. I often ask myself, “Who is the teacher here?” (Janean Mancini, Teacher, Celebrate the Children)
To prompt or not to prompt? ….that is the question. Physical Prompting/Assisting in Physical Education
To prompt or not to prompt?….that is the question. Prompting is the new four letter word in special education and should be avoided at all costs right? The true answer to this question lies in the setting in which it is used, the goals and objectives of the teacher and whether that teacher has a clear understanding of how to achieve those goals and objectives within their discipline.
In the pursuit of academic endeavors, teachers and parents of special needs and typical children know all too well the dangers of giving away the answers and doing things for children when they are capable of doing these things themselves. Too much prompting in these activities can absolutely be counterproductive to thinking and independence. These tasks are typically cognitive in nature and may involve fine motor skills, such as writing or keyboarding.
When learning physical/gross motor movements, as in Physical Education classes, prompt dependence does not occur if physical prompts are executed skillfully and eventually faded. After the repetition of a skill using physical prompting/assisting, the prompt should be gradually faded until the student begins to embody the skill for the first time and begins to feel how to execute it correctly, thereby gaining a deeper sense of mastery. This is all done with the utmost respect for each student’s free will and personal boundaries. I do not ever “force” a student to receive physical prompts, however, I do encourage it. I’ve used these techniques for years with special needs and typical students ranging in age from 3-65, and have documented their excellent progress. Physical prompting is just another name for what’s widely known and regularly used in yoga classes all over the world as an adjustment. I’ll refer to them simply as assists. Physically assisting/prompting with gross motor skills differs from prompting in the classroom mainly due to muscle memory and gravity vs. cognitive understanding.
Verbal Instructions, Modeling/Mirroring, Physically Assisting, Fading The Assist
Verbal instructions followed by modeling/mirroring the task for the students are naturally the first choice in teaching motor tasks and many students may learn them easily this way. For those who don’t, physical assists/prompts may be required and is a beneficial and valid tool to help anyone, whether special needs or typical, learn or improve upon gross motor skills. Dr. Wachs uses this method, as do most adaptive PE teachers, physical therapists, yoga teachers and coaches. Physical assists, gradually faded, give many students with motor planning challenges the opportunity to learn a motor skill that they otherwise wouldn’t be able to execute on their own.
Rhythm & Timing
Every student is uniquely different and may need an assist in one skill but not in another. Many students will fall into a relaxed rhythm and timing with the person assisting them as they begin to connect with the movement through repetition. It’s the same concept as rocking a baby, swinging on a swing or going for a long walk or run. Repetitious physical movements, whether passive or active, are paradoxically relaxing and invigorating at the same time! Anyone who’s ever received a Thai Yoga massage can attest to this. Older students who’ve never been taught this way may tolerate or only need 1-2 prompted tennis swings while others can handle and may benefit from 50 swings initially. The resulting joy, self-confidence and self-esteem I see when a student is able to accomplish a physical skill that they’ve only ever been able to watch others do before is worth the effort!
According to the American Coaches Association, muscle memory is “the result of teaching the muscles how to perform a specific activity and repeating that activity until it can be done freely without methodical thought”. It is the neurophysiological response to the repetition of gross motor tasks. In other words, the brain and body connect better when a physical demand is placed on it regularly. The more repetitious the task, the deeper the neurological pathway becomes and the less one will have to “think” about doing the task. Let’s use dribbling a basketball as an example. A very skilled basketball player who practices the sport daily doesn’t have to think about dribbling because the neurophysiological pathway for dribbling is deeply engrained. He or she is then able to use brain resources for strategy. The muscles aren’t really remembering, but rather the brain is, and is able to send a clear, strong signal to the muscles to execute the correct response. Creating a strong foundational muscle memory and body-brain connections is of paramount importance to academic success, according to Dr. Wachs in his book, Thinking Goes to School.
In the same way that the basketball player isn’t consciously thinking about dribbling, the student who doesn’t have to consciously think about how to sit up in a chair, or where his or her body is in relationship to the pencil, paper and desk is better able to use their brain resources for academic endeavors!
Once a student no longer has to think so long and hard about how to do the basic skill, then the brain is potentially able to learn and process the nuances of the sport, such as rules and strategies, thereby affording greater social opportunities. We DO want our students to think about the deeper things in life, which is precisely why we do NOT want them to have to think about movements that we take for granted. This is where physical assists may be needed so that they can feel in their bodies what they are being asked to do. If left on their own with just verbal instructions, many special needs students would simply never be able to participate because there’s no established neural pathway, or “dialogue”, between the brain and the body for the motor task given. Sadly, this is what often happens to students when they’re mainstreamed into typical PE classes, or left alone for “processing time”. This so often leads to the student doing nothing and feeling discouraged. Even if the student cognitively understands the instructions, they may not be able to effectively make the movement happen. This applies to a large percentage of typical adult learners too. How many of us have felt “uncoordinated” when doing something new? The difference is that a typical learner can more easily take command of the body brain continuum at will. Even then, it’s not easy. Imagine how our students feel!
When teaching sports, Adaptive Physical Education teachers use adapted equipment such as bigger, slower, flatter balls, balloons and other modalities to give students more time to make contact. Even the slowest moving balloon, however, will not stop moving in order to give a student extra processing time! Any physical endeavor is subject to the gravity of one’s own body weight. This may be the clearest differentiation between academic learning and motor learning. Motor learning is subject to the laws of gravity where as pure academic/cognitive learning is not!
We may need to help the student connect with a falling or fast moving object to help increase their reaction time by assisting them in doing the skill repeatedly. In coaching it’s called a drill. This repetition gives his or her body the feedback needed to create a new neural pathway in the brain for the task. It works the same way for us too. The more often we do a motor task, the more skilled we become at it. Aren’t 30 year olds better drivers than 16 year olds? Practice is just another word for repetition. A physical assist provides students with the correct body position, motion, timing and repetition that they may not be able to initiate or maintain on their own. It allows the student to actually DO and FEEL the practice. The neurons firing in the brain during motor movements don’t know that the movement is being assisted. From a neurophysiological perspective, all that matters is that the movement happens. Of course, the student is consciously aware of being assisted and for this reason it should be done with the utmost respect for the student and their tolerance level.
Ultimately, carefully designed and executed Physical Education classes help to lay down the foundation for academic success. Additionally, physical activity and sports provide the student with widely known health, social and affective benefits. Of course, the time frame in which this happens will vary widely in each student according to his or her individual cognitive and physical abilities. No single modality, Physical Education being among them, is a panacea for ASD. The activities that are chosen in a specialized Physical Education program and the methods used to teach them are one of the many holistic supports used to help foster success in our students’ education. Each one is not an end unto itself, but rather an important piece of the ASD puzzle. Physical Education has the potential to positively impact the lives of special needs students or not do much at all, depending on the methods used, and the level of support and respect it receives. (Wendy Beffert, Health & Physical Education Teacher, Celebrate the Children)
Thinking Goes To School, Hans G. Furth and Harry Wachs, Oxford Press, 1975)
Visual/Spatial Portals to Thinking, Feeling and Movement, Serena Wieder, Ph.D. & Harry Wachs, Profectum Foundation, 2012
We all see things differently. We all have our own unique perspective. I am not on the backside of your eyeballs. I don’t know how you perceive the world nor do you know how I really perceive the world.
We all can be artists because we all have great individual perspective. But a successful artist, visual or otherwise, must communicate their perspective to others through their medium. So for me, that would be painting, sculpture, and drawing; for a musician, it is music; for a dancer, it’s a dance, movement, theatre, drama, production. And also literature is art. It’s something emotional, a perspective.
We need to get students to be able to communicate, non-verbally in my case, also through mediums, artistic mediums.
So this is the dilemma. Every art teacher has to go to school, you learn, you know what it is to be an artist, you get to class and the kids are all like, “teach me how to draw like you” and you sit there and it suddenly hits you like a ton of bricks… I can’t teach anybody how to be an artist.
Why? Because it’s praxis. It’s an internal process. It’s hand-eye coordination, ideation, motor planning and execution. So what do I do? What is my role? My role is to guide and facilitate. I am kind of like the art tour guide and since I like metaphors, and I like visual metaphors, I am your art tour guide. (Mary Beth Scheerer, Art Teacher, Celebrate the Children)
Many times we find ourselves questioning our life decisions or rushing time by counting the days until the weekend. By living in the past or the present it is easy to become wrapped up in a world of anxiety and doubt. As educators, parents, students, and people in general, we face many difficult decisions and challenges, but once in a while we have to step back, take a deep breath and smile for what every moment may bring.
In today’s world, it becomes so easy to get caught up and only focus on the outcome. This is where Greenspan reminds us that it is not the product that matters, but more so the process. The most memorable experiences we can give our children, are those that have indulged all of their senses, highlighted their passions and reached them in a way that can never be forgotten. Some may view this as work; however, it’s as simple as putting reality aside and making time to play. (Laura Baldwin & Antoinette Price, Lead Paraprofessionals, Celebrate the Children)
“This is the real secret of life -- to be completely engaged with what you are doing in the here and now. And instead of calling it work, realize it is play.” ― Alan Wilson Watts
Playing Soccer is the perfect time to focus on the foot/ankle complex in Physical Education. Along with good core strength, the feet are literally our foundation. They connect us with the earth and ground us energetically. They provide the gross physical structure for balance, along with the intricate vestibular system. What looks like an ordinary soccer warm-up for the hips by lifting the legs and tapping on the inside and outside of the feet, is really designed to bring students' awareness to this often ignored body part. Dribbling, the most fundamental skill in soccer, is practiced not only as a way to improve upon soccer skills, but to help with this body awareness referred to by Dr. Wachs in Thinking Goes To School, as the “Mental Map of the Body” and also known as Motor Planning. Each tap of the soccer ball to the foot provides important feedback to the brain about where the feet are in relationship to the body and to surrounding objects.
Additionally, there is a very important eye tracking (and subsequent eye-foot coordination) element happening here, which Dr. Wachs describes as a vital element in academic endeavors. As students dribble the ball from right foot to left and change direction they are developing “Coordination of Body's Axes” (Wachs) also known as “Laterality and Directionality”. Further, practice with turning the feet in and out can also help to overcome certain unwanted reflexes so that other movements become more purposeful (See Wieder & Wachs Visual/Spatial Portals to Thinking, Feeling and Movement). Finally, soccer practice (and sports/physical activity in general) in and of it self, provides students with a useful and appropriate outlet for physical expression, which is innately at the core of our being. Who knew? (Wendy Beffert, Physical Education Teacher, Celebrate the Children)
The PCI reading program is a research based curriculum for students with developmental disabilities, autism, and significant learning disabilities. It is a program that helps nonreaders of all ages become successful at reading. This program has three levels which incorporates high-frequency words and real world words. Each level includes a variety of lessons, manipulatives, and activity sheets. It is through a system of repetition, hands-on practice, controlled reading, and high interest activities that help nonreaders become successful.
I use this program in my reading class and it is such a great program. In such a short amount of time students are reading! It is so exciting to see my students' confidence and reading ability soar.
(Jamie Burd, Teacher, Celebrate the Children)
The American Physical Therapy Association celebrates National Physical Therapy Month (NPTM) in October. Members of the APTA and the general public can utilize their website (www.apta.org) to learn more about the unique services Physical Therapists and Physical Therapist Assistants provide and to educate themselves about current health issues. To celebrate NPTM, our Physical Therapy staff is encouraging CTC families to get outside and work together to promote gross motor activities. Raking and bagging leaves is a perfect way to provide strengthening and endurance activities for our students and a perfect way to introduce chores to help out the family. For our younger students, a pile of leaves can be a way to provide a fun sensory experience while our older students can feel a sense of pride and accomplishment. (Physical Therapy Department, Celebrate the Children)
Students can experience difficulty transferring learned skills from one environment to another. Therefore, Community-Based Instruction is an integral part of our curriculum at CTC. Community-Based Instruction allows students to enhance their functional skills within a natural community setting, where such skills are used, in order to ease and enhance transitions to independent living, community participation, and employment.
A simple visit to a local store could become a great learning experience. Recently, my middle-aged students paid a visit to TJ Maxx. The assignment at TJ Maxx was to find items that would complete a "dress up" occasion outfit. This led to a class discussion about what occasions would require a suit, a tuxedo, or just a dressy shirt. This discussion led to another discussion about when it was appropriate for a boy or man to wear a tie. We considered which special occasions required a tie, and also which occasions required us to present our "best self" (possibly with a tie) such as a job interview.
Our discussion culminated in a tie-tying activity where each student was given a necktie and then given verbal and modeling instructions on tying a Windsor Knot. Each and every boy in the class showed complete interest in the activity and all students were determined to learn this skill. To remember this fun and useful activity, we took a class picture with each student wearing a tied tie.
Experience-based learning activities can be used at home and at school. It’s easy to create great learning experiences where the kids (and you) will have fun! (Kelly Reilly, Teacher, Celebrate the Children)
Contributions to this blog are made by Celebrate the Children's highly talented, interdisciplinary team and wonderful families.